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Osteoporosis Medication Access Described as ‘Wild West’ Amidst Concerns of Preventable Deaths
The manner in which osteoporosis drugs are prescribed in the UK has been described as a ‘wild west,’ potentially leading to thousands of avoidable deaths annually, according to a new report. Concerns are mounting regarding unequal access to crucial osteoporosis treatments, sparking criticism and calls for immediate reform to ensure consistent patient care and improve bone health outcomes nationwide.
Report Highlights Inconsistent Osteoporosis Prescription Practices
A recent report by the All Party Parliamentary Group (APPG) for Osteoporosis and Bone Health, comprised of MPs, Lords, and clinicians, revealed that a significant two-thirds of patients diagnosed with this brittle bone condition encounter difficulties in obtaining their prescribed medication. This finding underscores significant disparities in osteoporosis treatment accessibility.
‘Postcode Lottery’ for Osteoporosis Treatment
Experts suggest a ‘postcode lottery’ exists, driven by insufficient awareness among General Practitioners (GPs) regarding contemporary osteoporosis medications. This lack of uniform knowledge contributes to variations in prescribing habits across different regions.
Patient Experiences and Expert Opinions
‘It is evident that patients are being underserved,’ states Louise Statham, a clinical pharmacist at the University of Sunderland. Her statement emphasizes the patient-centric impact of the current inadequacies. ‘Individuals deserve uniform prescribing standards so that their geographical location does not dictate the quality of their osteoporosis treatment they receive.’
The Impact of Osteoporosis: A Major Health Concern
Osteoporosis affects over 3.5 million individuals in the UK, with women constituting nearly two-thirds of this patient population. Alarmingly, many individuals remain unaware of their condition until they experience a fracture, highlighting the silent progression of bone weakening in osteoporosis.
This disease renders bones exceptionally fragile; even minor actions like coughing or sneezing can induce breaks. Osteoporosis is implicated in half of all fractures in women and one in five fractures in men over the age of 50, with the spine and hips being the most frequent fracture sites.
Personal Account of Osteoporosis Treatment Disparity
Janice McKingley, 71, a resident of Leeds, received her osteoporosis diagnosis seven years prior. Initially, she was prescribed zoledronate, a specialized medication designed to enhance bone density. However, upon relocating to Dorset two years ago, she was informed that she was no longer eligible for this specific treatment.
Prescription practices for osteoporosis drugs have been described as chaotic, raising concerns about preventable deaths annually (stock image)
Subsequent scans have indicated a decline in her bone strength since the change in her medication access.
‘I constantly worry about suffering a fracture,’ McKingley, a grandmother, admits. ‘Living under this constant threat is terrifying, and I feel helpless to change my situation.’
Economic and Societal Costs of Osteoporosis Fractures
Osteoporosis-related fractures, many of which are deemed preventable, are estimated to cost the National Health Service (NHS) £4.5 billion annually. Hip fracture patients alone occupy one million hospital bed days each year, demonstrating the substantial burden on healthcare resources due to inadequate osteoporosis management.
The Royal Osteoporosis Society calculates that approximately 2,500 deaths occur each year as a consequence of the debilitating effects of preventable hip fractures, emphasizing the critical need for improved fracture prevention strategies.
Limited Access to Advanced Osteoporosis Medications
The APPG report critically pointed out that 1.4 million women who are eligible for romosozumab, a ‘bone-building’ osteoporosis therapy, are unable to procure it, placing them at elevated risk of bone fractures. This restricted access to innovative treatments is a major concern.
This injectable medication is primarily indicated for postmenopausal women exhibiting low bone density, a significant demographic vulnerable to severe osteoporosis.
Women also encounter obstacles in accessing denosumab, another bone-strengthening drug. Despite its availability via GPs, 1.2 million women are compelled to undergo specialist appointments, creating unnecessary delays and hurdles in osteoporosis treatment initiation.
Regional Disparities in Medication Availability
Research indicates substantial geographical variations in access to these essential osteoporosis drugs, highlighting a lack of standardized care across the nation.
Preventable fractures resulting from osteoporosis are estimated to impose a £4.5 billion annual cost on the NHS (stock image)
For instance, in Brighton, patients can obtain denosumab through their GP, whereas in Eastbourne, a mere 20 miles away, patients must await specialist consultations for the same medication. This ‘postcode lottery’ disproportionately disadvantages individuals residing in deprived areas, despite these populations being more susceptible to debilitating fractures due to osteoporosis.
The Royal Osteoporosis Society reports that 80 percent of the 14,000 annual calls to its specialist nurse helpline originate from individuals experiencing ‘extreme confusion’ regarding their osteoporosis medication options, highlighting a critical information gap.
‘This report reveals a ‘wild west’ scenario concerning bone drugs within the NHS, which is jeopardizing lives,’ asserts Craig Jones, chief executive of the Royal Osteoporosis Society. He strongly criticizes the chaotic nature of current practices. ‘The inconsistent and fragmented prescribing patterns across the UK are depriving tens of thousands of individuals of the treatments they urgently require.’
Calls for Improved Osteoporosis Care and Prevention
This report follows The Mail on Sunday’s launch of its War on Osteoporosis campaign last year, which urged the Government to establish clinics aimed at detecting early indicators of osteoporosis. These clinics are vital for early intervention and improved patient outcomes.
These specialized clinics, known as fracture liaison services, are currently operational in only half of the UK’s hospitals, indicating a significant shortfall in nationwide coverage for early osteoporosis diagnosis and fracture prevention.
Health Secretary Wes Streeting, during last year’s general election campaign, pledged that creating nationwide fracture liaison services would be a priority upon assuming office. However, he now states that this comprehensive rollout will not be completed until 2030, raising concerns about delayed action on osteoporosis care.
Sonia Kumar, MP for Dudley and a former NHS physiotherapist, commented, ‘With universal early diagnosis services coupled with equitable access to bone-strengthening medications, we can transform the lives of millions of individuals living with osteoporosis across the UK.’ She underscores the potential for significant positive change through systemic improvements.