My 15 year-old came down with a 'virus'… weeks later she was paralysed

Importance Score: 45 / 100 🔵


Teen Dancer’s Life Changed After Misdiagnosed Brain Hemorrhage

A promising teenage dancer suffered paralysis and loss of communication after what was initially mistaken for a minor illness turned out to be a severe brain hemorrhage. The young performer experienced a catastrophic brain bleed caused by a cavernoma, a cluster of abnormal blood vessels in the brain. This dangerous condition often presents subtle early symptoms, easily overlooked or attributed to common ailments like a cold. The dancer’s ordeal highlights the critical importance of recognizing potential signs of serious neurological issues, especially in young individuals.

Subtle Symptoms Led to Shocking Diagnosis

Ellie Morris-Davies, then 15, endured nine critical brain surgeries, including a craniectomy to relieve pressure, after the brain bleed was identified. The extensive series of operations resulted in paralysis and the inability to speak or eat. Her mother, Joanne Morris-Davies, 48, from Crewe, recounted that the initial indication of a problem resembled a severe migraine.

Initial Symptoms Mistaken for Migraine or Bug

In May 2024, Ellie started experiencing persistent headaches accompanied by light sensitivity. Initially, her family believed she was suffering from a viral illness, as nausea was also present. However, within a week, the severity of her condition became alarmingly apparent.

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Alarming Vomiting and Hospitalization

Ellie’s condition worsened, prompting a hospital visit when she began vomiting with alarming frequency – approximately 16 times daily. Medical professionals conducted blood tests and an MRI scan of her brain to pinpoint the issue.

Cavernoma: The Underlying Cause

Diagnostic imaging revealed a brain bleed originating from a cavernoma. This condition, characterized by clusters of abnormal blood vessels in the brain, often remains asymptomatic. When symptoms do manifest, they can include seizures, headaches, dizziness, and speech difficulties. The most significant risk associated with cavernomas is rupture of blood vessels, triggering a hemorrhage, which can lead to stroke and irreversible brain damage.

Prevalence and Characteristics of Cavernoma

According to health statistics, cavernomas affect approximately one in 600 individuals in the UK, many of whom remain unaware due to the absence of symptoms. The condition typically develops between the ages of 20 and 40 and can sometimes have a familial component.

Mother’s Account of Initial Misdiagnosis

‘I had never heard of cavernomas before,’ Mrs. Morris-Davies stated. ‘When we went to the emergency room, I was simply hoping it was a bad migraine. We were unaware of how long it had been present, but doctors indicated it had likely been there for some time.’

Emergency Surgeries and Intensive Care

Ellie was transferred to Alder Hey Children’s Hospital in Liverpool for specialized treatment. She underwent initial surgery, but the continued risk of further bleeding necessitated a decompressive craniectomy.

Decompressive Craniectomy Procedure

This surgical procedure involves temporarily removing a portion of the skull to alleviate pressure. The removed skull fragment is preserved in the patient’s abdomen to maintain sterility before eventual reinsertion.

Signs of Resilience Amidst Setback

‘After the operation, she wasn’t speaking,’ Mrs. Morris-Davies remembered. ‘Nurses played Taylor Swift songs on her iPad, as she was performing in Liverpool at the time. Ellie attempted a slight movement in bed, and I knew her spirit was still there.’

Extensive Recovery and Rehabilitation

Despite the life-saving interventions, Ellie’s condition declined further, requiring immediate transfer to intensive care. In total, she underwent nine surgeries over 13 weeks to address the damage caused by the cavernoma. She also battled serious infections during this period.

Physiotherapy and Gradual Progress

Recovery involved intensive daily physiotherapy to assist Ellie in relearning fundamental functions such as walking, speaking, and swallowing, as explained by her pediatric neurosurgeon, Dr. Benedetta Pettorini.

Triumph Over Adversity: Regaining Movement and Speech

‘After seven weeks of immobility, she showed initial leg movement,’ Dr. Pettorini noted. ‘Fine motor skills in her fingers and toes were the last to return. Ellie’s determined and resilient nature is driving her recovery. We are currently focused on relentless physiotherapy.’

Return to Dance and Future Aspirations

Today, Ellie has made remarkable progress. She can walk, talk, and eat once more, although some limitations persist. Showing incredible determination, the teenager has returned to dance classes, activities she has participated in since the age of three, including performances in pantomimes and West End productions.

Emotional Return to the Stage

Ellie recently performed in a show with her dance class, an event described by her mother as deeply emotional.

Teenager’s Gratitude and Determination

Ellie reflected, ‘There was a point when I thought I might never go home. But the staff on ward 4A were incredibly supportive and kept my spirits high. While some challenges remain, I am confident I will overcome them. I am eager to return to the stage, singing and dancing.’

Fundraising for Continued Therapy

Ellie’s friends are currently fundraising to enable her participation in a specialized therapy program in London this summer, aimed at maximizing her recovery.

Neurosurgeon’s Admiration

Miss Pettorini concluded, ‘Ellie is an exceptionally resilient and inspiring young woman, full of life. It has been a privilege to be part of her care.’


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