Talking to Wales Online in 2017, Sean spoke of how he and wife Luned thought they would be judged for their son’s condition.
Sean explained: “Initially we hid it and made excuses but as soon as we started talking to people about it was like a burden had been lifted.
“Luned and I were worried that we would be judged as parents – did we work too much? There is all this stigma for parents, too.
“The parental stigma has been one of the main issues for us, and something I haven’t heard much about.